Pulmonary Hypertension in Kids: How One Family Found Hope

What started as a typical Thursday on the school playground turned into a life-altering journey for 9-year-old Mason.

After hitting his head during recess, Mason fainted the next morning, displaying what initially seemed like seizure symptoms. His mother, Jennifer, quickly took him to a local hospital, where a routine heart exam revealed something far more serious.

"The physician’s assistant did a quick sonogram of his heart and immediately called for the ultrasound tech," Jennifer said.

Alarming test results soon led to Mason’s transfer to WMCHealth’s Maria Fareri Children's Hospital, where he was admitted to the Pediatric Intensive Care Unit. There, doctors would soon diagnose him with pulmonary hypertension—a rare but serious condition causing dangerously high blood pressure in the arteries of the lungs.

“You’re in the Right Hands”

Coming from a medical family, Jennifer was particularly relieved when she met Erika Rosenzweig, MD, the recently appointed Physician-in-Chief at Maria Fareri Children's Hospital.

Jennifer's uncle, a retired critical care doctor, had already been researching Mason’s symptoms and immediately recognized Dr. Rosenzweig’s name.

“You’re in the right hands,” he assured her, noting that Dr. Rosenzweig is an internationally renowned expert in pulmonary hypertension, with a legacy of pioneering treatments that have transformed patient outcomes.

What is Pulmonary Hypertension?

In children Mason's age, pulmonary hypertension can develop from various causes, including congenital heart defects, genetic factors or underlying lung conditions.

Without proper treatment, the condition can lead to heart failure as the right side of the heart works harder to pump blood through narrowed pulmonary arteries. While historically the prognosis was poor, modern treatments have significantly improved outcomes, though careful monitoring and management are essential.

Expert, Comprehensive Care

Under Dr. Rosenzweig’s guidance, Mason began intensive treatment, including medication delivered through a specialized pump.

"Dr. Rosenzweig and the entire team, from the nurses to the overnight staff, were incredible," Jennifer said. "She explained each step with compassion, making sure we understood the plan forward."

During their hospital stay, Mason and his mother were surrounded by support. Child Life specialists helped Mason understand his treatment using his favorite stuffed triceratops, while the nursing team ensured Jennifer received regular updates from the doctors.

Mason returned home just in time for Halloween, with his condition stabilized and ongoing treatment in place. Recent echocardiograms show improvement, offering hope for his continued progress.

"It's been a learning experience," Jennifer said, "but we're taking it one day at a time."

Now, Mason is looking forward to rejoining his friends at school, excited to jump back into his favorite subjects and playground games. While his journey isn’t over, the prospect of returning to his usual routine brings a sense of normalcy and hope for brighter days ahead.

For the Health of Your Child

If your child is facing a serious health condition, don’t wait to seek expert care. Schedule an appointment with our specialists at Maria Fareri Children’s Hospital today and give your child the best chance for a healthy future.

Our comprehensive pediatric pulmonary hypertension program is led by one of the nation's leading experts ensuring your child receives the highest level of care. With our dedicated team and advanced treatments, we offer hope and positive outcomes for children like Mason. Learn more about our pediatric cardiology services and how we can help your family.